tag:blogger.com,1999:blog-2971383103866151443.post660342611621407884..comments2024-03-19T09:42:45.476-07:00Comments on The World We Create: After 15 Years Married and 16 Years Together/ Their Finest/ Learning to Embrace Life During Precarious Times.Unknownnoreply@blogger.comBlogger8125tag:blogger.com,1999:blog-2971383103866151443.post-22566344475903003842017-07-19T15:38:40.078-07:002017-07-19T15:38:40.078-07:00Amy: Thank you!! I appreciate that:) Amy: Thank you!! I appreciate that:) Kmariehttps://www.blogger.com/profile/12947797743800775255noreply@blogger.comtag:blogger.com,1999:blog-2971383103866151443.post-73856224274800312822017-07-17T19:00:59.897-07:002017-07-17T19:00:59.897-07:00so enjoyed reading this. Happy 15th Anniversary to...so enjoyed reading this. Happy 15th Anniversary to you both!<br /><br />So much love and admiration of you both...xo<br /><br />AmyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2971383103866151443.post-6964221149239709312017-07-14T21:47:03.123-07:002017-07-14T21:47:03.123-07:00SL Your comments always warm my heart. Im glad you...SL Your comments always warm my heart. Im glad you found it liberating and honest:) and inspiring:)<br />I am also honoured that you think I am helping many others own and accept their journey. That is a HUGE goal of mine and even hearing it is happening once is a HUGE boon to my existence. It is a huge outlet for myself first but I am glad that in turn it is an outlet for others. I like how you pointed out that "being alone in our thoughts and experiences is more painful and dehumanizing. Sharing and expressing is a kind of healing,and gives dignity to our painful feelings, I firmly believe. Also, in the future, this blog will act as a treasure house of reassurance/comfort for those who are yet to be born /diagnosed in this world. Who are confused and in pain but have not yet heard from someone similar. I am so happy to have you in my life !" FIrst off, what a wonderful sentence about expression and dignity in sharing...but also what a high compliment as I hope that it CAN help the few who made need a hand in their diagnosis journey but that is a huge weight and I wish to do that justice...but I am also ok if no one reads it but you or me or whomever and they get what they came here for or walk away feeling better about their world or someone elses...<br /><br />I am very happy to have you in my life!!! ANd thank you for the anniversary wishes. Very sweet. May you also enjoy many more with your husband...:) xoKmariehttps://www.blogger.com/profile/12947797743800775255noreply@blogger.comtag:blogger.com,1999:blog-2971383103866151443.post-68148501744422413332017-07-14T21:41:53.170-07:002017-07-14T21:41:53.170-07:00M thanks!M thanks!Kmariehttps://www.blogger.com/profile/12947797743800775255noreply@blogger.comtag:blogger.com,1999:blog-2971383103866151443.post-74052872810716634082017-07-14T21:41:29.494-07:002017-07-14T21:41:29.494-07:00Ashe: I hope we do too! Thanks. I can’t figure out...Ashe: I hope we do too! Thanks. I can’t figure out what the seasonal trigger is blast it all! I don’t know why…yes I have those sensory things too for sure. The same ones as you and this seems to be something ON TOP of that I can not figure out.<br />Lol your saying is similar to mine and I have actually said that too! Lol and my family teases me about being superstitious. LOL Because I think the exact same thing about jinxing it or putting it out into the universe and attracting that type of energy. LOL. too funny.<br />ITs good to hear that. I find even without anemia that parenting, mothering, choring, wifing, being a friend…it all takes so much energy and I have always needed those quick lie downs too…I think most sensory overloaded and introverts plus autistics usually do. So even before I did. But NOW I need so much more time and often feel like a zombie… all day and like my soul is dead if I have to deal with anything extra or an other emotions….Yes the needs are high. I admire all normal women. LOL. You are doing great.<br />Kmariehttps://www.blogger.com/profile/12947797743800775255noreply@blogger.comtag:blogger.com,1999:blog-2971383103866151443.post-38393058141831127682017-07-14T21:28:04.208-07:002017-07-14T21:28:04.208-07:00Happy anniversary! Hope you two get at least fifte...Happy anniversary! Hope you two get at least fifteen more! :D<br /><br />You've probably already thought of this from every possible angle, but could you by any chance have some kind of seasonal allergies or sensitivities? I'm always sicker in the summer because my sensory issues and chemical sensitivities do not mix well with the noise of the air conditioner or the freon, and sometimes I'll get hot slowly without realizing it so it strikes like a sudden stomach bug.<br /><br />My saying is "This too shall pass. It may pass like a kidney stone, but it will pass." Which then prompts the voice in the back of my head to say "Stop saying that or you'll jinx yourself and get actual kidney stones!" XD<br /><br />I always marvel at the energy you manage to scrounge up for housework, kids, school work, and other things while dealing with anemia and the other stuff. My bloodwork is fine but there have been many days where I am so exhausted that I have to lay down force myself to keep breathing because even something that basic and simple takes up so much energy. Which only lasts 2-5 minutes because somebody always needs something and up I have to get again.<br /><br />Ashenoreply@blogger.comtag:blogger.com,1999:blog-2971383103866151443.post-76293504757414910892017-07-13T22:58:33.192-07:002017-07-13T22:58:33.192-07:00This is one of your deepest and most inspiring pos...This is one of your deepest and most inspiring post, I feel. You have described your journey with your beloved husband, the shared joys and the sufferings in a way that allowed me to feel so much, so deeply. And I feel liberated with your words of expression.<br />Ours has been the same journey, and I know exactly how it feels and I am not exaggerating when I am saying this- The Same Journey. <br />I would love to highlight these sentences (that you wrote) below, because it is exactly how I have felt in my journey as well:-<br /><br />{ "those couples that are never really celebrated but have a love that is kept spicy, strong yet average, in it's natural every day love."} - so true and honest !!<br /><br />{"it IS possible to come back home to each other, suddenly fall back into attraction, and grow back together."}- again, true !<br />{"Partially this is due to health. It has been engrained in me since childhood. I have always struggled with sensory issues and disease undiagnosed until recently. Long term suffering that came and went. Pain unexplained but still vividly real. One day I was fine, the next hour ...."}- can relate to it always !<br />{"That is life with disease, chronic illness and sensory overload. And it can go two ways. One can either allow it to defeat, or be more determined when the good moments come to LIVE. What do I do when I am in so much pain? I pretend I am my future self and this self speaks to me, "K this will pass. Either by death or by time...}- my feelings too, so often !<br /><br />I would also like to thank you for writing this post. Through this post, you have inspired me in many ways to go on and on...<br />When you write, please remember that although you are writing your own personal experiences, you are helping many others (aspergers/non-aspergers) to own and accept themselves and their pain/journey. It (writing your own experiences ) is like an outlet not only for you, but for me and others as well because in this journey , being alone in our thoughts and experiences is more painful and dehumanizing. Sharing and expressing is a kind of healing,and gives dignity to our painful feelings, I firmly believe. Also, in the future, this blog will act as a treasure house of reassurance/comfort for those who are yet to be born /diagnosed in this world. Who are confused and in pain but have not yet heard from someone similar. I am so happy to have you in my life !<br />Wishing you and your husband a Happy Anniversary once again !.Shttps://www.blogger.com/profile/17363854783134050594noreply@blogger.comtag:blogger.com,1999:blog-2971383103866151443.post-50504480679320294912017-07-13T22:03:16.397-07:002017-07-13T22:03:16.397-07:00Vulnerable and valuable, as usual- MVulnerable and valuable, as usual- MAnonymousnoreply@blogger.com